Dr. Sodani free advice on BMT:1,000 children from 68 countries

Since June 2011,Dr. Pietro Sodani (Cure Thalassemia co-founder and scientific coordinator,who has done more than 400 BMTs with Prof. Lucarelli,the inventor of BMT for thalassemia) gives his free professional advice via email to tell patients if they can have a Bone Marrow Transplantation(BMT) to become thalassemia free with no more transfusions.

In november 2011 we reached the milestone of 100 emails answered,and in November 2012 we have cumulatively replied to 1,000 people from all over the world,a very important step for us.

We have answered questions of patients,parents and doctors from 68 countries:
Australia,Albania,Algeria,Australia,Azerbaijan,Bahrain,Bangladesh,Bhutan,Brasil,Bulgaria,Canada,China,Colombia,Cyprus,Croatia,Egypt,Fiji_Island,Greece,India,Indonesia,Iraq,Ireland,Italy,Ivory_Coast,Jamaica,Jordan,Kenya,Laos,Lybia,Malaysia,Maldives,Mauritius,Nepal,Netherlands,New_Zealand,Nigeria,Oman,Pakistan,Palestina,Papua_New_Guinea,Philippines,Poland,Qatar,Saudi_Arabia,Scotland,Sierra_Leone,Singapore,Slovakia,Spain,Sri_Lanka,South_Africa,Sudan,Switzerland,Sweden,Syria,Thailand,Trinidad_and_Tobago,Turkey,Uganda,UEA,UK,Ukraina,USA,Venezuela and Vietnam.

We will keep working with love and passion to give accurate and reliable information to the thalassemia community worldwide.

38 comments to Dr. Sodani free advice on BMT:1,000 children from 68 countries

  • Farhana Yasmin

    my little son who is 5 month old has been suffering from EBeta thalassemia.he has already been transfused two times.he is my first child.i need some advices regarding BMT.Please

  • Eugenio La Mesa

    Dear Farhana Yasmin,

    thanks for your question.
    You had already contacted us from our website about 1 month ago,and we had replied to you. Can you confirm me that you had received our reply?

    Best Regards,
    Eugenio La Mesa

  • Farhana Yasmin

    sorry to notice that i didn’t get any reply from you.
    I’m from Bangladesh.Be a mother can i be a donor for my child? if can then how should i proceed and what does BMT cost?

  • Eugenio La Mesa

    Hi,please check your junk mail folder,and I’ve anyway sent it again now.

    Yes,the mother can be a donor:
    http://www.curethalassemia.org/bone-marrow-transplantation-bmt/bmt-from-haploidentical-mother-to-child/

    You should do the HLA typing (it is a simple blood test) of both parents and send via email the result.

    For the cost,let’s talk about it privately via email.

  • sunny

    Dear sir me want to treat my niece he is thalasemia patient so we want to bron marrow transfer soo plz tell me where we treat which county n hossprital….

  • Eugenio La Mesa

    Dear Sunny,

    you have also contacted us through the contact page of our site,and we’ve replied to your email address.
    Did you receive it?

    Best Regards,
    Eugenio La Mesa

  • Saumyasib Mukhopadhyay

    Dear Sir,

    With my heart being briken when I got the information today that My son is having thallasamia major. He is of 7 moths old and we recide in India.
    Please help else nothing is coming out from me.

    Just let me know what I need to do.

    Please help.

    Regards,

    Saumyasib Mukhopadhyay

    • Eugenio La Mesa

      Dear sir,

      we need to know if your son has brothers or sisters.

      We’ve replied to you privately,let’s keep the conversation going using email.

      Best Regards,
      Eugenio La Mesa

  • shamim jamily

    hi my son have major thalassemia and he has just one brother i don’t know that he can be a donor or not if he doesn’t will his mother be the donor ?

    • Eugenio La Mesa

      Hi,

      you’ve also contacted us through the contact form of the website and we have replied to you.

      You need to do the HLA typing test to see who can be a donor,let’s keep the conversation privately via email.

      Best Regards,
      Eugenio La Mesa

  • نجلاء المقطري

    hi my brother have thalassemia he is 22 years old he uses desferal every day (3 disferal) now his suger increase in his blood and he can’t walk i’dlike to know the reasons and how we can solve this problem how we can help him to walk again

  • Mian shafiq

    Pls tell me the Thallasemia stoppage of blood transfusion is any other solution
    Best regards

  • please send me some point about thalassemia free society
    by which we prevent our society from that problem

  • Eugenio La Mesa

    thanks for your comment. As you can read in our site,our focus is the cure of thalassemia with Bone Marrow Transplant(BMT),which allows to be thalassemia free. We are not involved in prevention.

    What exactly are you looking for?

    Thanks and Regards,
    Eugenio La Mesa

  • Fahad Iqbal

    Dear Dr. Sodani,

    I hope you are well.

    My daughter is 19 months old,total 17 time blood transfused to her.
    I have three questions;
    1. How blood time can increase.
    2. How can reduce Iron without using Asunra tables and Desfrul.
    3. What is the permanent solution.

    Thanks in advance.

    Best regards,
    Fahad Iqbal
    Pakistan

  • Eugenio La Mesa

    Dear Fahad Iqbal,

    thanks for your questions. As you can read in our site,our focus is the cure and not the treatment.
    So for questions 1) and 2) I suggest to ask them in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com/

    The only permanent solution is Bone Marrow Transplant(BMT):
    http://www.curethalassemia.org/bone-marrow-transplantation-bmt/

    Since the best potential donors for a BMT are brothers or sisters,can you please tell me if your daughter has brothers or sisters?

    Let me have the answers,so that I’ll then tell you the next step to have the free advice of Dr. Pietro Sodani to become thalassemia free.

    Best Regards,
    Eugenio La Mesa

  • Rahul Singh

    Dear Sir,

    I want to know the machine name by which we can check hemoglobin without having blood. This machine was introduced in America last year but I don’t know the name of that machine.

    It will be so nice of you if you can let me know the name of the machine and manufacturer company.

    Please mail me the information asap.

  • Eugenio La Mesa

    Dear sir,

    As you can read in our site,we only focus in the cure of thalassemia major. I suggest you to ask your question in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com

    Best Regards,
    Eugenio La Mesa

  • Akhter Hussain

    Dear Sir,

    i have two daughter elder daughter is 12 years and younger is 8 year. My youngher daughter who is suffering with thalassemia.we checked the bone merrow of both the sister and its match. but we dont know the cost.
    if can then how should i proceed and what does BMT cost?
    Please note i am from lower middle class family so please advice in chipest way.
    Regards
    Askhter Hussain

  • Eugenio La Mesa

    Dear sir,

    I’ve replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Sriya Maharana

    Dear Sir,
    Sriya Maharana,D\O- Satyabadi Maharana,K.K.S. Women’s College,Manikhamb,Motiganj,Balasore,Orissa,Pin- 756003,India is a Major Thalassemia. So I want to your advice ,how to solve or treatment or cure this disease.

  • Eugenio La Mesa

    Dear Sriya,
    thanks for your question. The permanent solution is Bone Marrow Transplant(BMT). You had already contacted us last year and now we have replied again to you privately,so please check your email.

    Best Regards,
    Eugenio

  • PRAVIN KULKARNI

    Dear sir,
    Please help my friend,his son age is 4 months,he is suffring from Bone Marrow Transplant(BMT). i need help from your side or advise to cure that disease.Please note that he is from lower middle class family so please advice in chipest way.
    Regards

    Pravin Kulkarni.

  • Eugenio La Mesa

    Dear sir,
    thanks for your question. We have replied to you privately,please check your email.
    Regards,
    Eugenio La Mesa

  • Devesh Ghule

    Dear Sir,

    By god grace I hope you are doing well.
    Its about my first kid Vedansh (male age 6 month),yesterday I came to know his HB down to 4.4 and suffering from
    beta Major Thalassemia so yesterday he has his given first blood transfused.

    Please let me know is there any other way to cure this,
    I heard about BMT but is it possible to get BMT other than siblings as this is my first kid.

    Thanks,
    Devesh.

  • Eugenio La Mesa

    Dear sir,

    I’m doing well,thanks and I hope the same for you.

    As you can read in the FAQ of our site,BMT in thalassemia is possible even if you don’t have a matching sibling. You’ve also contacted through the form of our website and we have replied to you,please check your email and let’s keep the conversation privately.

    Best Regards,
    Eugenio La Mesa

  • Ramesh jain

    Dear sir
    My elder daughter is thalassemia major .she is 14yrs.myself and my younger son’s HLA did not match.Can you help us what to do next.Please guide and help me

  • Eugenio La Mesa

    Dear sir,
    there are some options to cure her. You’ve also contacted us filling the form of our website and we have replied to you,so please read your email and let’s keep the conversation on privately.

    Best Regards,
    Eugenio La Mesa

  • my little son who is 16 month old has been suffering from EBeta thalassemia.he has already been transfused 09 times.he is my first child.i need some advices regarding BMT.Please

    • Eugenio La Mesa

      Dear wasim khan,

      we have replied to your email,Please check it

      Best Regards,
      Eugenio La Mesa

  • NIAMUL HOSSAIN

    DEAR SIR,MY DAGHTOUR IS MAJOR THELASSMIA.SHE IS 5YRS.WHAT IS THE PARMANENT SOLUTION?

  • Eugenio La Mesa

    Dear sir,

    we have replied to you privately. Please check your email.

    Best Regards,
    Eugenio La Mesa

  • Bilal khalid

    hello doctor i ‘am bilal khalid from fasalabad pakistan..

    my age is 28 years and i am havin treament of my disease from last 20 years

    when i was of 8 years old then i come to know that i have the disease of thalassemia..

    i took blood bottles from the age of 8 to 18 after every 30 to 45 days..

    after 18 to 24 years blood was supply to my body when it needs,,like after 3 years.. and when i had a supleen operation..

    after my supleen operation,,means after the removal of supleen from my body i was totaly fit i had a good health..

    after that i got a fever in that fever my health goes down and down day by day..

    but now i am perfectly good but i’am still weaker my body is not much build up as like other youngsters or the guys of my age,,

    my weight is 63kg,,

    height is 6.1.. no doubt in it that still i took medicines.. but the problem is that my health is still there it is stuck..

    i want to grow up my muscles my body my bones they all are weakkk..

    because my doctr suggests me to get married then i will be normal like otherss..

    i want to know from you that is it true that i can get married or there will be no problem in my marriage life or in my wife or in my childern???

    please let me know about this??

    i want to take treatment from you please tell me that you will treat me over here in pakistan or i have to come to your place in ???

    i also have a C VIRUS.. its category is (HCV Genotype is 3a..)

    my iron level is normally below 2000.. like 1400,1200 and 900 some thing.. m waiting ur reply and my contct numbr is +92-345-8662570

  • Eugenio La Mesa

    Thanks for having contacted us again.
    As have replied to you,Dr. Sodani doesn’t recommend BMT for patient older than 17 years.

    Since we are not expert in the treatment but only in the cure,I suggest you to ask your question in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com

    Best Regards,
    Eugenio La Mesa

  • Eugenio La Mesa

    To ask questions to Dr. Pietro Sodani,please do not add comments in this blog,but use the following form:
    http://www.curethalassemia.org/contact/

    Thanks for your collaboration.

    Eugenio La Mesa