Dr. Sodani will be in India on June 14-15 to visit thalassemia children for haplo BMT at the NH/MSCC in Bangalore

On June 14th and 15th 2013 Dr. Pietro Sodani will visit for free thalassemia children who plan to do a Bone Marrow Transplant from haploidentical mother using protocol 30 to become thalassemia free with no more transfusions.
He will be at the Narayana Hrudayalaya/Mazumdar Shaw Cancer Centre in Bangalore(India).

To make a reservation to meet Dr. Sodani,read here.

34 comments to Dr. Sodani will be in India on June 14-15 to visit thalassemia children for haplo BMT at the NH/MSCC in Bangalore

  • ASHRITH

    HI

    MY ANCESTORS ARE FROM TRIBAL REGION AND SICKLE CELL THALESSEMIA RUNS IN OUR FAMILY.UNFORTUNATELY MY SON HAS IT.

    I CAME TO KNOW ABOUT THIS ONLY WHEN MY SON HAD IT.THERE ARE MANY PEOPLE FROM OUR VILLAGE WHO PASSSED AWAY WITHOUT EVEN KNOWING ABOUT THEIR DISEASE
    MY FATHER MOVED TO CITY WHEN I WAS YOUNG FROM THAT TRIBAL REGION AND NOW I HAVE AMPLE OPPORTUNITY TO TREAT MY CHILD.

    HE IS TAKING A SYRUP AND SOME TABLETS.HE TAKES AN INJECTION EVERY FIVE YEARS

    PLEASE LET ME KNOW IF ANYTHING CAN BE DONE REGARDING THE ABOVE

  • Eugenio La Mesa

    Hi,

    our focus is thalassemia and not sickle cell. I suggest to contact IME foundation in Rome,they experience with sickle cell:http://www.fondazioneime.it/index_en.php

    Best Regards,
    Eugenio La Mesa

  • Yash

    Hi,,,,my friend suffering from thalasemia ….he is taking treatment …from himanchal should i asking him to take appointment with u…..he looses his weight now he is only 36kg at age of 19….plz me me

  • Farhana Yasmin

    My little son who is 7 month old has been suffering from EBeta Thalassemia.we want to do BMT for my son. before that we want to meet Dr. Sodani.so let me know the process to make a reservation.

    Farhana
    Bangladesh

  • Pankaj jain (Ritik Jain)

    Hi Sir,

    I met you in your last visit. Is there any need to meet you again?

    Whats the purpose of this visit?

    Also in our last meeting you told us that there would be some progress happening by August. Any update on this also?

    When are you planning to start haploidentiacal in India?

  • Eugenio La Mesa

    Hi sir,

    for now there is no need to meet again.

    The purpose is to visit other thalassemia children and to work with the doctors of the hospital to prepare the beninning of the haploidentiacal BMT from mother to child in Bangalore. Our goal is to start before the end of this year but we will write more on oure site and blog after the trip to India.

    Best Regards,
    Eugenio La Mesa

  • Hi Sir,My 8 years old son is a Beta Thal Major,He does not any Sibling match donor. Local Docs advised to search for MUD donor.It is very difficult for me. I want to know (1) Helpoidentical BMT from mother and is it cureable. (2) How can I search for a MUD donor for BMT. Can u help me please?

  • Eugenio La Mesa

    Hi sir,
    you’ve also contacted us via email and we have replied to you,please check your email.
    Anyway to find a MUD donor you should do it trough an hospital.
    For haploidentical mother you can read more here:
    http://www.curethalassemia.org/bone-marrow-transplantation-bmt/bmt-from-haploidentical-mother-to-child/

    Best Regards,
    Eugenio La Mesa

  • myself dr nishikant tiple junior resident paediatrics svngmc yavatmal dealing with many thalasemmia patient in my region and feel very sad abt attitude of patient relative when they come to know that their child is not going to survive more as their children having thalessemia.as this region is tribal very few possible option are available here.could u help those peoples sir ……………

  • Niamatullah

    Dear Sir,
    My daughter has Thalesemia. I want to know whether you will visit Dubai in near future? If yes,I want to meet you for an advice.

    With Thanks

  • Eugenio La Mesa

    Dear Niamatullah,

    in the near future we don’t have plans for Dubai,our focus at the moment is India. But there parent coming to India from Dubai,we already have met them,so if you want you can come to Bangalore.

    Best Regards,
    Eugenio La Mesa

  • rakesh acharya

    Do u treat senior citizens ? I want to treat my dadsuffering from thalasemia

  • Pritam Relwani

    Hi Sir,

    I have 2 kids,the elder one is healthy and is 9yrs old now. My younger son is 2 &1/2 yrs and has been diagnosed for Thal major. No Thal reported in our family (both parent’s.)but he was born pre term at the GA of 28 weeks,he initially also had complications with lungs,but ok now. He is on Tab. Asunra 100mg DT(1 tab per day) &Inj. Desferal (once a month)

    Request your kind advice on this.
    Kind Regards

  • Eugenio La Mesa

    Hi sir,
    thanks for your question. The next step it to do HLA typing for all the family members so that Dr. Sodani can give you his free advice. I’ve replied to you privately with the details,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Farhana Yasmin

    hi
    I am going to visit Dr. Sodani on 14th morning with my son.I want to ask you that is it required to do HLA typing for both parent(mother &also father)? if required then what type of HLA Typing should i ask to the diagnostic center to test?

  • Eugenio La Mesa

    Hi,
    yes,do the HLA of both parents. Dr. Sodani suggest to do HLA typying with locus locus A,B,C,DR,DQB1.

    Best Regards,
    Eugenio La Mesa

  • Farhana Yasmin

    Got your previous reply. Please ignore my last question.Thanks

  • Hi Sir,
    i am diagnosed with Beta Hetrozygous thal(Nov 2000),aged 42yrs,hb 10.4% taking folic acid tab 5mg every 2days,is it compitable for me BMT treatment,please advice me.
    with thanks,

  • Eugenio La Mesa

    Hi Sir,
    you’ve also contacted us via email with che contact form of our website,and we have replied to you privately. Please check your email.

    Best Regards,
    Eugenio La Mesa

  • himanshu babbar

    Hi Sir,
    My child Himanshu is suffering from thallassemia.His age is 15 years and his weight is 28 kg.He is a thalassemia major and i want to take information from you about bone marrrow transplant so please help me on my id
    Thank You
    Ashok

  • Eugenio La Mesa

    Hi Sir,
    you’ve also contacted us via email several times with che contact form of our website,and we have replied to you privately. Please check your email.

    Best Regards,
    Eugenio La Mesa

  • Farhana Yasmin

    Hi Eugenio La Mesa &Dr. Sodani
    thanks a lot for your suggestions during the visit on 14th june. we will keep in touch with you.

  • Eugenio La Mesa

    Hi Farhana Yasmin,

    it has been a pleasure,we are to help you and all the other thalassemia parents.

    We will keep in touch and send us any other question you might have.

    Best Regards,
    Eugenio &Pietro

  • Devesh Ghule

    Dear Sir,
    Hope you are doing well.

    Tommorw I came to know that my first 6 month kid is suffering from beta major Thalassemia,Could you please suggest me the permanant solution to cure this as my kid is only 6 months old and doctor suggests he requires every month blood transfusion.

    I am awaiting your favourable reply sir,please do something for him,I heard aboout BMT,please let me know how can I go through it.

    Also need to know about your next visit in India.

    Thanks in Advance,
    Devesh Ghule
    Mumbai,Mah,India.

  • Eugenio La Mesa

    Dear sir,

    I’m doing well,thanks and I hope the same for you.

    As you can read in the FAQ of our site,BMT in thalassemia is possible even if you don’t have a matching sibling. You’ve also contacted through the form of our website and we have replied to you,please check your email and let’s keep the conversation privately.

    Best Regards,
    Eugenio La Mesa

  • Partha

    Sir,
    My friend has Thalessemia Trait. She is 18 years old . Is there any treatment for her to be free from that disease?

  • Eugenio La Mesa

    Dear sir,

    thanks for your email about your friend. I’ve replied to you privately,please read your email.

    Best Regards,
    Eugenio La Mesa

  • Dear sir,
    Pls advise for BTM

  • Eugenio La Mesa

    Dear sir,

    we need to know the age of the child and if he has brothers or sister,who are the best potential donors for a BMT. We have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Eugenio La Mesa

    To ask questions to Dr. Pietro Sodani,please do not add comments in this blog,but use the following form:
    http://www.curethalassemia.org/contact/

    Thanks for your collaboration.

    Eugenio La Mesa