TEDMEDLive Bologna:BMT from haploidentical mother to child in thalassemia –Pietro Sodani


Pietro Sodani‘s talk at TEDMEDLive Bologna on BMT from from haploidentical mother to child in thalassemia using protocol 30 as a social business.

19 comments to TEDMEDLive Bologna:BMT from haploidentical mother to child in thalassemia –Pietro Sodani

  • I have 4year 7 months thalassemia baby,without any brother or sister,would like to know the available options of treatment apart from transfusion n iron chelation,kindly advise

  • Eugenio La Mesa

    Hi,
    you’ve also contacted us filling the contact form of the website,and we have replied. Please check your email so we will keep the conversation privately,since there are different options.

    Best Regards,
    Eugenio La Mesa

  • Ramesh jain

    My. Daughter is thal major ,her HLA did not match mine and my younger son .she is 14yrs please guide how to proceed to cure her.

  • Eugenio La Mesa

    Dear sir,
    there are different options to cure her from thalassemia even if the brother is not an HLA match.. You’ve also contacted us filling the form of our website and we have replied to you,so please read your email and let’s keep the conversation on privately.

    Best Regards,
    Eugenio La Mesa

  • Khalid

    My. Daughter is major Thalassemia,her HLA did not matched any one in my family .she is 1 year 7 months,please guide how to transplant

  • Eugenio La Mesa

    Dear sir,

    there are different options for your daughter and since you’ve also contacted us from our website we have replied to you privately;please check your email.

    Best Regards,
    Eugenio La Mesa

  • paras manglani

    i have a thalessimia major .i m 23 yrs old.what i do????

  • Eugenio La Mesa

    Hi,
    thanks for your question. we have replied to you privately since you’ve also contacted us from our website

    Best Regards,
    Eugenio La Mesa

  • Denise

    My partner and I are both thalassemia minor. Is there any way such as genetical manipulation/technique we can do to prevent the baby to have thalassemia major? Thank you

  • Eugenio La Mesa

    Hi,

    As you can read in our site,we only focus in the cure of thalassemia major. I suggest you to ask your question in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com

    Best Regards,
    Eugenio La Mesa

  • soumya satpathy

    dear sir,my elder sister’s daughter is 2.5 yrs old.she is suffer from thalesemia. pls suggest me for her treatment. is the treatment permanently curable or not? what is the cost for treatment?
    rgds
    soumya

  • Eugenio La Mesa

    Dear soumya satpathy,

    thanks for your question. Yes the cure is permeant and we have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Venka Reddy

    My nephew have thalessimia . he is 2 yrs old as well as he is having one brother.what i do???? what is cost for this treatment in India currency
    Please help .

  • Eugenio La Mesa

    Dear Venka Reddy,

    we need to know if the brother is a compatible donor to do a Bone Marrow Transplant. We’ve replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Girish

    Dear Sir,
    I have a daughter who is six years old having thalassemia major,taking regular blood transfusions &chelation,unfortunately her HLA did not matched with her young sister. Please help us further on this,where &how can we move next to save her.

    Thanks,

    Girish

  • Eugenio La Mesa

    Dear Girish,

    as you can read in the FAQ http://www.curethalassemia.org/faq/) written by Dr. Sodani,you could find a donor in a bone marrow donor bank,or you can use the mother as donor even if she is not compatible:
    http://www.curethalassemia.org/bone-marrow-transplantation-bmt/bmt-from-haploidentical-mother-to-child/

    We have replied to you and let’s keep the conversation privately,so please check your email.

    Best Regards,
    Eugenio La Mesa

  • khasifa

    hey there my girl of five years has sickle cell anemia and we are opting for haploidentical transplant. please can you advice. thanks

  • Eugenio La Mesa

    hello,

    As you can read in our site,we only focus in the cure of thalassemia major. I suggest you to ask your question to IME foundation in Rome:http://www.fondazioneime.it/index_en.php

    Best Regards,
    Eugenio La Mesa

  • Eugenio La Mesa

    To ask questions to Dr. Pietro Sodani,please do not add comments in this blog,but use the following form:
    http://www.curethalassemia.org/contact/

    Thanks for your collaboration.

    Eugenio La Mesa