Dr. Sodani plans to start before the end of 2013 BMT from haploidentical mother to child with thalassemia in India

We have good news for all the thalassemia children and their families who don’t have an HLA matching donor to do a BMT to become thalassemia free with no more transfusions.

The Narayana Hrudayalaya/Mazumdar Shaw Cancer Centre in Bangalore(India) has had all the necessary authorizations,and Cure Thalassemia and Dr. Pietro Sodani plan to start doing there the BMT from haploidentical mother to child with thalassemia using protocol 30 before the end of 2013.He is the inventor of this kind of BMT.

In the next weeks we will publish more information in the haploidentical mother to child page and in our FAQ,and we will also use this blog in the category haploidentical.

We thank all the people who have worked hard for years to make it happen,especially the doctors and the management of the Narayana Hrudayalaya/Mazumdar Shaw Cancer Centre.

If you want to do BMT from haploidentical mother for your child,contact us.

56 comments to Dr. Sodani plans to start before the end of 2013 BMT from haploidentical mother to child with thalassemia in India

  • Kareem Karassery

    Dear Sir,
    As the General convener of Blood Patients Protection council I have many concern in the future of Thalassemia patients registered in our organization. Near about 70 Thalassemia patients registered in our organization including my 19 year old daughter Hasna. Lack of matched siblings and severe financial crunch many of them are not in a position to perform the BMT.
    So i humbly request you to be kind enough to consider for including our Thalassemia patients in the list of your free BMT from Haploidentical mother to child program.
    Expecting your valuable Reply
    Kareem Karassery
    Gen. Convener,
    Blood Patients Protection Council(BPPC)
    Phoenix Sailam
    P>O>Karassery
    Calicut.673602
    Kerala,India
    Email.kareemkarassery@gmail.com
    Mob.09447019182

    • Eugenio La Mesa

      Dear Kareem Karassery,

      thanks for questions and we understand your situation. Dr. Sodani gives free advice via email on BMT and he visits for free children who plan to do the BMT,but unfortunately we can’t give the haploidentical mother to child BMT for free. I wish we had the money to give it for free,but we have to pay all our costs and we just don’t have the money to help all the children who are in need,we a social business and not a charity.
      We anyway plan to give 1 BMT from matching sibling at a very reduced price every 4 haploidentical BMT.

      Best Regards,
      Eugenio La Mesa

  • Manoj Khandelwal

    we want to know your progrm in detail. we are doing humanitarian helping work by medical help at Assam. if you want to do any camp or want to provide your services at Assam then please give reply accordingly.

    • Eugenio La Mesa

      on the website you find many information on what we do,we do BMT from matching donor and from haploidentical mother to child.

      We also give free advice via email on BMT:
      http://www.curethalassemia.org/free-advice-on-bmt/

      For now our focus is Bangalore,but in the future we also plan to go elsewhere,so thank for having informed us about your organization.

      Best Regards,
      Eugenio La Mesa

  • We at Ruby Hall Clinic have done many Haploidentical transplant for Thalassaemia.
    First was done more than a year back. visit-www.vijayramanan.com

  • Eugenio La Mesa

    thanks for the information.
    Can you please tell how many you did and what protocol are you using?

    Best Regards,
    Eugenio La Mesa

  • Manoj

    It’s great opportunity for us. My son,Amit Nandi (14yrs),Thallasemia,Major),transfusion dependent from his age of 3months in 20/22 days interval. Can Haplo BMT possible from his mother at this age? If possible please let me know the details regarding this along with the cost,as we belong to a lower middle class family. Your earliest response will make us happy. Thanks and Regard.
    Mano Nandi.
    310,Upper Chelidanga,
    Asansol-713304,W.B. India.
    Cell No- +919434156334
    e-mail- nandi.manoj@gmail.com

    • Eugenio La Mesa

      Dear Manoj,

      thanks for your message and we have already been in touch 1 year ago.
      We’ve replied to you privately,please check your email.

      Best Regards,
      Eugenio La Mesa

  • Pratik

    Hello,

    May I know if there is any age barrier? What if the patient is 18y old? Or below 30s? Or only young patients have good chance?

    Regards.

    • Eugenio La Mesa

      Hello,
      as you can read in the FAQ written by Dr. Sodani:
      http://www.curethalassemia.org/faq/
      he doesn’t recommend BMT for patients older than 17 years,because the risk is too high.
      The best results are with young children (<7 years) in good shape.

      Regards,
      Eugenio La Mesa

  • sirjabir Abdulhamid

    Hi,
    i am from Kenya,pls send me the cost and details for the Bmt. I really need it for my 5 yes son. Regards

  • Eugenio La Mesa

    Hi,

    does your son have thalassemia major? Please let me know so that we can reply to you.

    Regards,
    Eugenio La Mesa

  • azam mukaddam

    My son Farhan is 12 years old. He was diagnosed Thalassemia Intermediate at the age of 3. His date of birth in February 2001. He has been transfused only 3 times. First in August 2010 when he had pneumonia. Second in December 2012 as his H.B. was 5.7 and Third August 2013 when his h.b. was 4.7.
    He is our only son no sibblings. should we opt for BMT. We live in Mumbai. Kindly also let us know the cost.

    Best Regards

    Azam Mukaddam

  • Eugenio La Mesa

    Dear Azam Mukaddam,

    I’ve forwarded your question to Dr. Pietro Sodani and he will reply to you privately. Please check your email.

    Best Regards,
    Eugenio La Mesa

  • nisha jasuja

    hi,i have twins of age 3 one male and other female. Both r thal major. Please tell can both be cured by haploidentical bmt. What will be total expenditure. When r u going to start haploidentical bmt in india.plz reply

  • Eugenio La Mesa

    Hi,

    thanks for your questions. We have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Tariq

    Hello dear eugenio la mesa
    we have be in touch long time a go i am living in dubai and we have talking with dr dalal she knows you and she advice to contacts you and get start with the BMT for both of my kids AMER 7.5 Years AKRAM 5 Years
    this my contacts if you can provied me your contacts details through email so i can talk to you and dr sodani

    talhalaqi@gmail.com

    Thanks
    Tariq

  • Eugenio La Mesa

    Hello dear Tariq,

    thanks for having contacted us again,and thanks to dr dalal for having referred you to us.

    I’ve replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Honey

    My son Gurman is 1 years old. He was diagnosed Thalassemia major at the age of 6months His date of birth 24 aug 2013 He has been transfused only 3times. First in 2april 2013 his h.b.was 4gm when he had fever. Second in 21may as his H.B. was 8.8gm and Third 22aug 2013 when his h.b. was 7gm i am shoking he had thel major or intermediate.please guide Dr. Sodani plans he was thel major or intermediate.
    He is our only son no sibblings. should we opt for PGI. We live in Patiala. Kindly also let us know thanks honey

  • Eugenio La Mesa

    Hi,

    thanks for your question for Dr. Sodani. We have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Honey

    Dear Eugenio, thanks for talking time to answer the questions. we(me,my wife and son)all got tested for HLA last month.please see the atteched reports and let us know what you think. send ur mail id i send reports.

    very Respectfully.
    Thanks,
    Honey

  • Eugenio La Mesa

    Dear Honey,

    I had already replied to you from my email ID,if you haven’t received it yet please check your junk mail folder. I’ve anyway sent it again now.

    Best Regards,
    Eugenio

  • Manmohan Thakur

    Dear Sir,
    I have baby Anshuman 6 month suffering Major Thalassemia. and only one son no siblling. wants to BMT.
    Expecting your valuable Reply
    Manmohan Thakur

  • Eugenio La Mesa

    Dear Manmohan Thakur,

    as you can read in our FAQ written by Dr. Pietro Sodani,you can find a donor in a bone marrow donor bank,or you can use the mother as donor even if she is not compatible:
    http://www.curethalassemia.org/faq/

    We have replied more in detail privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Dear sir,
    My younger daughter was diagnosed with Thal major when she was 3 months old and at present she is6 years old and she is getting blood transfusions at Pgi chandigarh every 21 to 28 days and maintaining her Hb at 10 and above. she is quite chirpy and naughty girl. Now I’m getting HLA typing with her sister. In serological test 3 out of 4 antigens matched and now PGI is doing the molecular test ADLR test for confirmation. I wish to know what is success rate of haploidentical mother BMT. Can mother who is diabetic NIDDM be the donor and what is the cost involved.
    Viney Sood

  • Eugenio La Mesa

    Dear sir,

    thanks for your question. We have replied to you privately,but the email that you’ve given us seems not to work. Can you please double check and give me the email address we can reply to?

    Best Regards,
    Eugenio La Mesa

  • Shubhangi Deshmukh

    Hi,

    My son is diagnosed Beta Thalassemia major. He is 1 year old. And 2 transfusion are done. We have done done HLA typing but. Unfortunately our matching is 4:6. Is it possible to do haploidentical BMT? And what will be the expenditure and risk?

    Regards,
    Shubhangi Deshmukh

  • Eugenio La Mesa

    Hi,

    yes it could be possible,and we have replied to you privately. Please check your email.

    Regards,
    Eugenio La Mesa

  • this in continuation of my querry of sept 19. I’m sorry for providing u with wrong mail ID.
    Dear sir,
    My younger daughter was diagnosed with Thal major when she was 3 months old and at present she is6 years old and she is getting blood transfusions at Pgi chandigarh every 21 to 28 days and maintaining her Hb at 10 and above. she is quite chirpy and naughty girl. Now I’m getting HLA typing with her sister. In serological test 3 out of 4 antigens matched and now PGI is doing the molecular test ADLR test for confirmation.is this testing sufficient or i should go in for more specific test to do hla matching. I wish to know what is success rate of haploidentical mother BMT. Can mother who is diabetic NIDDM be the donor and what is the cost involved in it.
    Viney Sood

    • Eugenio La Mesa

      thanks for the new email address,we have replied to you,please check your email.

      Best Regards,
      Eugenio La Mesa

  • Gurdeep

    My daughter is 1.5 yrs old and now doctor has diagnosed that she has beta thalassemia major. As per doctor advised we have started blood transfusion but as per my knowledge it is only temporary treatment. We want to go with BMT as soon as possible but for this doctors has advised that patient should have her siblings as donor. We are not in position right now where we can plan her siblings rapidly.

    Could you please help us to provide another option for her BMT so that we can cure her permanent ASAP without any irrelevant delay?

    I will be highly obliged to you if you can provide your precious time so that I can come and discuss this with you thoroughly and go ahead her treatment for her best.
    Regards
    Gurdeep Singh

  • Eugenio La Mesa

    Hello,

    you’ve also contacted us through our website,we have replied to you,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Gururaja.G

    Dear sir,My son is suffering from Beta Thal Major.I want all the details about this programme.Also I want to know about BMT.So please inform me to whom I should I contact @Narayana Hrudayalaya.Pls send all the details through my mail.My Email ID is gururaja.g@rediffmail.com &My contact No is +919448606828,+919448363654 or +919480147596.Pls send me all the details.Thanking You Sir.
    Gururaja.G

  • Eugenio La Mesa

    Dear sir,

    thanks for having contacted us again,we have already been in touch last year. You’ve also sent an email from our website and we have replied to you,please check your email.

    Best Regards,
    Eugenio La Mesa

  • neeraj aggarwal

    sir
    Is it possible to do haploidentical at the age of 21 years. ..

  • Eugenio La Mesa

    sir,

    as you can read in the FAQ of our site. Dr. Sodani doesn’t recommend BMT for patients older than 17 years,since the risk is too high.

    Best Regards,
    Eugenio La Mesa

  • khazi

    Hello sir,
    My cousin’s daughter is of 2years old and doctor says that she is suffering from thalassemia,at present her humoglobin is 5.2 grm lb,what should be done right now? after BMT is this decises get cure? and wat will be the cost fom BMT?

  • Eugenio La Mesa

    Hello sir,

    thanks for your question. I’ve replied to you privately,please check your email. The cost depends on who is the donor,since the procedure is different.

    Best Regards,
    Eugenio La Mesa

  • Amjad Hossain

    Dear sir,My son is suffering from Beta Talasamia from after his born.It is genetically carried from his mother. My wife also carry it. Its only first baby. When my wife was pregnant then Doctor find out it. Now my baby 3 years old. His HB level 8 to 9. Now both of mother and baby under consultant of a hematologist at Chittagong Medical College Hospital in Bangladesh. actually we are live in Bangladesh.at last I want to know from you what I do now? There is any treatment? .Please send me all the details by my mail.
    Thanking You Sir.
    Amjad Hossain
    Chittagong,Bangladesh
    email:amjadacs75@yahoo.com
    cell 088 01823946278

  • Eugenio La Mesa

    Dear Amjad Hossain,

    thanks for your question. There is a solution and we have replied to you privately,please check your email.

    Best Regards.
    Eugenio La Mesa

  • Najib

    Thanks Mr Doc this will be a good opportunity for those who effect by this bad disease. and also want to know about about the cost for this treatment?
    if possible plz share the cost in my privet email plz and am in the hurry to know more about this treatment asap. thanks Doc.

  • Eugenio La Mesa

    Dear Najib,

    we have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Satnam Kaur

    Dear Sir,It has been an exciting news that you have undertaken such a plan I shall be highly obliged if you could guide me in the matter of my only son age 20 who is thalasemic major and has undergone splenectomy and gall bladder operation.Can my son go for BMT if HLA matches with parents.

    • Eugenio La Mesa

      Dear Satnam Kaur,

      you’ve also contacted us via email and we have replied to you. Please check your email.

      Best Regards,
      Eugenio La Mesa

  • Avinash kanet

    My younger sister she is nine years old suffring from thalassemia major. We done her HLA and other two of my uncles childrens but there HlA’s are not match with her. now we dont know how to find doner for her and where sussesfully bonemarrow transplantation done and how to make an appointment with Dr.pietro sodani and where.

  • Eugenio La Mesa

    Dear Avinash kanet
    you’ve also contacted us via email and we have replied to you. Please check your email.

    Best Regards,
    Eugenio La Mesa

  • mumtajsurya

    I am a thalassemic. I am 26 years old. Married. Please suggest me about spleen actomy.and my childbirth.

  • Eugenio La Mesa

    Hi,

    As you can read in our site,we only focus in the cure of thalassemia major and not in the treatment. I suggest you to ask your question in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com
    which also has a Facebook group:
    https://www.facebook.com/groups/thalpal

    Best Regards,
    Eugenio La mesa

  • jehangir khan

    a child age about 7 months reported “HIGH F CONSISTENT WITH THALASSEMIA MAJOR”
    kindly tell me the patient situation in the light of above remarks.
    thanks
    jehangir khan,Lahore,Pakistan
    00923004064765

  • Eugenio La Mesa

    dear sir,

    thanks for your question. We have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Salim

    I am a thalassemic. I am 39 years old. Married. Please suggest me about spleen actomy.and my childbirth.

  • Eugenio La Mesa

    Hi sir,

    As you can read in our site,we only focus in the cure of thalassemia major and not in the treatment. I suggest you to ask your question in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com
    which also has a Facebook group:
    https://www.facebook.com/groups/thalpal

    Best Regards,
    Eugenio La Mesa

  • mukesh

    hi,my daughter is 11 years old.we have to transfuse blood in every 20 days.by this blood transfusion the level of iron is going up.now we dont know how to find doner for her and where sussesfully bonemarrow transplantation done and how to her thalassemia.

  • Eugenio La Mesa

    hi,

    we have replied to your email address,but it is the wrong one,we got an error. Can you please give me the correct email address?

    Thanks and Regards,
    Eugenio La Mesa

  • Eugenio La Mesa

    To ask questions to Dr. Pietro Sodani,please do not add comments in this blog,but use the following form:
    http://www.curethalassemia.org/contact/

    Thanks for your collaboration.

    Eugenio La Mesa

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