Selection of the first children who will do BMT from haploidentical mother with Dr. Sodani in India

As we have written some weeks ago,Dr. Pietro Sodani plans to start BMT from haploidentical mother to child with thalassemia using protocol 30 before the end of 2013 in Bangalore(India).

In cooperation with the doctors of the BMT unit of the Narayana Hrudayalaya/Mazumdar Shaw Cancer Centre,Dr. Sodani has started the selection of the first children who will do the BMT.
Every child and every donor must do pre-transplant investigations and evaluation in Bangalore.

Once the children and the donors will have finished the evaluation,then Dr. Sodani and the Indian doctors will decide who are going to be the first ones.

If you want to know more or if you have any question,contact us.

35 comments to Selection of the first children who will do BMT from haploidentical mother with Dr. Sodani in India

  • Riaz

    Hi,

    My two nephews are Thalassemia patients and we are in Pakistan. We Have the means to come to India if required. We also have donors in shape of healthy sisters and mother of the patients

    please guide us about the financial and other requirements.

    Regards,

    Riaz

  • Eugenio La Mesa

    Hi,

    you’ve also contacted us via email and we have replied to you. Please check your email.

    Best Regards,
    Eugenio La Mesa

  • radheshyam

    helo.
    mera ek 22 month ki doughter Thalassemia patients hey pls jara batayenge ki ye thik ho sakta hey agar han ! toh elaj ke liye kitna kharcha ayenge pls bataye..?

  • Eugenio La Mesa

    Helo,
    please write in english otherwhise we can’t help you.

    Best Regards,
    Eugenio La Mesa

  • Respected Doc. Hi there !! this is Ashfaq A. Memon from Thatta Sindh Pakistan. I have Hgb D Disease &My wife has Thalassemia trait. I have 2 sons. First one 1 1/2 year &he is carrier,the other one is 4 mo. old. The younger one is being diagnosed as a pt:of Thal. Major recently.
    Doc. How can U help us to get my son cured. What will be the best time for him to go for BMT. What kind of investigations be needed to be done. Rough estimation of expenses. Any professional discount since I am also related to Med. field. Working as a R.M.O in a district level Hosp.
    with regards &hope for the detailed reply.
    I thank U sir/ Madam.

  • God will help U &your Team for helping Sick &needy people.

    I thank U &appreciate your hard work,heartly efforts &help to the needy.

  • I sent you an e-mail regarding my baby boy who is 4 months now,he is having thalassemia major. I am looking for his treatment BMT as an option.
    Can you please help me what will be the best time for him for such treatment.
    I thank You very much for the help.
    Sincerely
    Ashfaq Ahmed Memon.

  • Mother is thal minor carrier. Can be she a good candidate as a donor for BMT haploidentical method.

    • Eugenio La Mesa

      Hello,

      thanks for your nice words about us and for the questions. We have replied to you privately ,please check your email.

      Best Regards,
      Eugenio La Mesa

  • Atul Kalena

    Hi
    my self Atul,
    my wife is 7 month pregnent and she is thallesemia minor &i am normal,so what is the impect on my child. pls help me.

  • Eugenio La Mesa

    Hi,

    We have replied to you privately ,please check your email.

    Best Regards,
    Eugenio La Mesa

  • Shivaji Yewale

    Hi,

    My cousin son has been detected as Thalassemia two year back . now he is getting fill blood within 21 days . Is it possible to increase this duration by taking any medicine ?

    Please let us know what will be the cost of MBT,
    Where that operation can be conducted in India ,Maharashtra .
    And what type of donor for BMT operation required .

    Awaiting for your valuable replay .

    Thanks
    Shivaji

  • Eugenio La Mesa

    Hi,

    thanks for your question. Please check your email,we have answered all your questions.

    Best Regards,
    Eugenio La Mesa

  • Dear ,
    hello my son Thalassemia patients and we are in Pakistan. my son age is now 11 years old.every 20 days we arrange blood. please guide us about the financial and other requirements. i am not financially strong. please help me and save my son life.

    • Eugenio La Mesa

      Dear sajjad.

      thanks for the information. We have replied to you answering your question,please check your email.

      Best Regards,
      Eugenio La Mesa

  • a waiting for your reply.
    sajjad from karachi pakistan.

  • My son has been detected as Thalassemia 10 year back . now he is getting fill blood within 20 days . Is it possible to increase this duration by taking any medicine ?

  • shamim jamily

    hi i went to india for treatment of my son who has thalassemia major but there was some ways of treatment one finding unrelated donor,cord blood,and one way from parents we couldn’t decide which one will be the best so i want to ask from doctor Sodni to guide me that cord blood will be success for thalassemia.

  • Eugenio La Mesa

    Hi,

    thanks for having contacted us again,we have already been in touch some months ago.
    We have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • vikash mehta

    sir,kindly give details of thalassemia major and bone marrow transplanation ,what is the right age for it

  • Eugenio La Mesa

    sir,

    you had already contacted us through the contact form of our website.
    We have replied again to you to your email address,please check your email.

    Best Regards,
    Eugenio La Mesa

  • shamim jamily

    hi i want to know that Dr.select any child and when he will do the BMT please update the latest news about this .

  • Eugenio La Mesa

    hi,the criteria are decided by Dr. Sodani and the team of doctors of the hospital. The date of the BMT hasn’t been decided yet.

  • Heena Gandhi

    Hi
    I am Heena from New Delhi,my brother is suffering from Thalassaemia Major and he is 17 years old,we have been doing all the possible treatments from blood transfusions to Deferasirox drug intake on a regular basis.
    Can you please brief me about the BMT process you are doing at your organisation with all other required details.
    Waiting for a sooner reply.
    Thanks

  • Eugenio La Mesa

    Hi,

    thanks for your question. We have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • vasu

    Hi
    my self VASU,
    my wife is 8 month pregnent and she is Beta thallesemia minor so what is the impect on my child. also i have 8 years sons effect my 8 years sons pls help me.

  • Eugenio La Mesa

    Hi,

    thanks for your question.

    As you can read in our site,we only focus in the cure of thalassemia major. I suggest you to ask your question in this excellent online forum:
    http://www.thalassemiapatientsandfriends.com
    which also has a Facebook group:
    https://www.facebook.com/groups/thalpal

    Best Regards,
    Eugenio La Mesa

  • shamim jamily

    hi
    any news about the selection of first child and the date of Operation we are waiting to hear about it soon

  • Eugenio La Mesa

    Hi,

    the selection is still ongoing,and within a few weeks the doctors will decide who is going to be the first child.

    The date of the operation will probably be in March 2014.

    Best Regards,
    Eugenio La Mesa

  • Naresh

    Hi,
    My nephew is a patient of Major thalassemia and his age is 8 years. Can you please suggest me if there is any permanent treatment of this.

  • Eugenio La Mesa

    Hi,

    we have replied to you privately,please check your email.

    Best Regards,
    Eugenio La Mesa

  • shamim jamily

    so i want to know the latest news as 2013 finished so have you select any one or not yet.

  • Eugenio La Mesa

    yes we have selected the first child and he plans to start in March because he has to finish the school first.

  • Eugenio La Mesa

    To ask questions to Dr. Pietro Sodani,please do not add comments in this blog,but use the following form:
    http://www.curethalassemia.org/contact/

    Thanks for your collaboration.

    Eugenio La Mesa